Milly Shapiro is widely famous today as an up-and-coming actress. Born as Amelia Shapiro on 16th July 2002, this 20-year-old entertainer came into the spotlight after her remarkable performance in the horror movie, Hereditary. In 2018, that film was given the title, “the scariest movie” way before its release, and it further impacted this young star.
Besides working on the big screens, Milly even has appeared in a bunch of Broadway productions. But, we are not here to talk about her rising career in this article. Here, we bring you all the facts about the rare condition that this actress sufferers from.
So, what is it? Will Milly ever be okay? And, does it have a good or bad effect on her life? Read the article below to find out about her disorder and health issues!
Milly Shapiro Suffers From A Rare Genetic Disorder; What Is It?
The beautiful actress Milly suffers from a rare genetic condition named, Cleidocranial Dysplasia. It is one of the very unique conditions that affects one in a million people.
Cleidocranial Dysplasia (CCD) is a disease that affects one’s teeth and bones, like the skull, spine, collarbones, and bones in the legs. In simple words, genetically, because of CCD, people have deformed bones or might have bones that are more fragile than normal. Even more so, some people even have certain bones absent from the body, typically the collarbones.
To add, this disorder even makes a person look very small than their actual age. This is actually the case with Milly. Despite being an adult, people often criticize her for the way she looks; it is because of CCD and the actress can do nothing much about it.
Milly and Gaten Matarazzo, Or Dustin, As People May Know Him Suffer From The Same Condition
Many might already know this, but Gaten Matarazzo, popular as Dustin from the show, Stranger Things also suffers from the same condition as Milly does.
In fact, many even believed that these two actors were related to each other because of their similar appearance. However, Milly later clarified in a TikTok video explaining how people suffering from CCD often look similar.
It has been confirmed that both Matarazzo and Shapiro have even attended an event for CCD together in 2019. Both of these actors also seem to work tirelessly to aware people of this disease through social media.
It is also noted that Milly’s own sister, Abi Monterey, also suffers from CCD. At least these two sisters can stick together!
Does Cleidocranial Dysplasia Affect Shapiro’s Day-To-Day Life? The Condition vs Milly’s Acting Career
When you have a small stature and missing collarbones, it is bound to have an impact on you on a daily basis. On the contrary, this isn’t the case for Milly – she gained huge popularity out of it!
Despite the hate and negative comments, Shapiro has been able to shine bright as a celebrity. After the 2018 premiere of Hereditary, she highly became popular as a child star with the most terrifying looks. Moreover, Shapiro was able to filter out all the criticisms and focus only on the positive comments that people were passing on about her remarkable performance. This further helped her to strive more for success and gain fame as an up-and-coming actress.
In addition to this, CCD has never ever stopped her from pursuing a fabulous acting career. In 2013, she played the role of Matilda Wormwood in the Broadway production of Matilda the Musical. Likewise, she even appeared in an Off-Broadway production of You’re A Good Man, Charlie Brown. Even more so, she is even the youngest recipient of the award, Tony Honor, as well.
Thus, it is safe to say that CCD has not yet affected Milly’s acting career. And hopefully, it never does.
It Took A Toll On Her Mental Health In The Past; Was She Bullied?
Bullying often leaves a person with a scar in their mind forever. Actress, Milly Shapiro has also opened up about how she was bullied from a very young age. Thus, it is obvious that this left a very bad impact on her mind mentally while growing up.
According to the actress herself, people would often pass mean comments on the way she looked. Most of them would usually talk about how she looks so young for her age.
How Does Shapiro Cope With All The Hate Comments These Days?
After years of struggling, however, Milly has finally understood and accepted herself as she is. As she is a 20-year-old young woman, she has realized that bullying is bad and should stand against it.
Furthermore, to help others like her, she has worked with the No Bully program. Not only this, but Shapiro has even appeared in a short documentary, Broadway Kids Against Bullying.
To add, in an interview, when asked how she feels about bullying, Shapiro said,
“I care deeply about stopping bullying. Over the past five years, I’ve been a part of an organisation called No Bully, which works with educators and leaders to eradicate bullying in schools through lessons in empathy, rather than singling out the bully, because people are only mean when they are hurting. It’s something I’m personally passionate about as the victim of bullying.”
Bullying is indeed a very bad practice. We should all stand against it.
Is Milly Shapiro’ condition curable? She will Have To Spend The Rest Of Her Life With It
As mentioned earlier, CCD is a genetic condition, and typically, such conditions are incurable. This means Milly will have to spend the rest of her life with this disease.
On the contrary, there are some treatment options that she can use. Many people with CCD go for reconstructive surgery to reshape their deformed facial structures. Similarly, reshaping bones in other parts of the body like the legs and spine is also reported to be helpful. Calcium and Vitamin D supplements are also used to strengthen fragile bones.
Regardless of what the treatment options are, if Milly is happy with the way she is, we should be able to accept her decision and move on.
Does She Also Have Shapiro Syndrome?
Our sources tell us that many people confuse Milly to have the Shapiro Syndrome – we’re here to erase this confusion.
CCD and Shapiro Syndrome are two entirely different disorders. While the one that Milly has affects bones, this another one is a neurological disease that causes a person to sweat excessively and show symptoms of polydipsia, hypothermia, nausea, and many more.
So, to clear the doubt, no, Shapiro does not have Shapiro Syndrome.